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Life with chronic pain: a sobering reminder

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Reading Parenting with chronic pain on Slate was a huge wrenching reality check for me.

There’s nothing new in there. No surprises about how chronic pain plus the rigors of parenting go down. Nothing that I haven’t worried over and discussed to death with PiC. There were many many days where I just couldn’t see committing to parenthood because of it. But reading another chronic pain mother’s experience, after the child has arrived and is older, is a bit of a kick in the gut nonetheless.

Chronic pain has now dominated 2/3 of my life.  There is no cure and very few effective ameliorating treatments for what I have other than trying not to “overdo it” (which is to say, do ANYthing that resembles having a real life) on bad days.

I have no reason to think that it’ll get any better.  Parenting was always going to be a challenge but parenting with only 65% of normal function, at best, well, that’s going to be a hell of a thing.

I wonder if this is a huge mistake for LB’s sake.   My parents, in some very real ways, shattered my late teens and most of my 20s with their financial and health instability and poor decisions.  Am I setting LB up for an equally difficult path?

Obviously you could argue that no one knows what tomorrow brings and that terrible things could happen to any healthy parent as well but

A) most people don’t really actually get hit by a bus so that “anything could happen” argument holds very little water here practically speaking (and anything could STILL happen but magically getting better is not likely) and

B) I already have an existing chronic and limiting condition that has only gotten progressively worse over the years. This isn’t a game of What If, it’s a When and How Badly will this deteriorate?

We’ve committed.

We are committed. There’s no turning back and I don’t think we would choose to if we could turn back time. (I don’t know. I just don’t think we would. And maybe that’s just because I’m stupid. But it’s highly likely that LB will be an only child if we don’t adopt.)

But this just reminds me that I’m not paranoid, that the sort of lurking fear that I’ll be crippled “someday” is not being dramatic given the number of days I can only just exist.

This is why I’ve always insisted that our emergency savings are UNTOUCHABLE. And our savings rate must NEVER fall below 25%. When I get too sick or broken to work, I need to know we won’t be falling back on the charity of … who exactly? No one in my family is fit as support even were they inclined to provide it, the few who might be in a financial position to help are terrible people and I’d never ever ask them for help. His family’s got their hands full already.

Simply put, we must maintain solid financial health because my physical health is at best, average, on a good day.


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